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| National Craniofacial Foundation 3100 Carlisle Street Suite 215 Dallas, TX 75204 Phone: (800)535-3643 |
| NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse One AMS Circle Bethesda, MA 20892-3675 Phone: (301)495-4484 |
| Center for Craniofacial Gentics Department of Orthodontics of the University Regensburg 93042 Regensburg Germany DR. Lian Golan Phone: +49/941/9446097 Fax: +49/941/9446169 Cellulat: +49/177/6573704 |
| Children's Craniofacial Association P.O. Box 280297 Dallas, TX 75228 Phone: (972)994-9902 and (800)535-3643 e-mail: contactcca@ccakids.com Web site: www.ccakids.com |
| About Face International 123 Edward STreet, Suite 1003 Toronto, Ontario M5G 1E2 Phone: (416)597-2229 or 1-800-665-3223 Fax: (416)597-8494 e-mail: abtface@interlog.com web site: www.interlog.com/abtface |
| National organization of rare disorders, inc. (NORD) p.o. box 8923 new fairfield, ct 06812-8923 Phone:(203)746-6518 Fax: (203)746-6481 TDD: (203)746-6927 e-mail orphan@rarediseases.org They charge you for the information that they send and I have the same information on this site and mine is free. |
| Faces: The National Craniofacial Association P.O. Box 11082 Chattanooga, TN 37401 Phone numbers: (423)266-1632 and (800)332-2373 e-mail: faces@faces-cranio.org web site: www.faces-cranio.org |
| Canadian Organization for Rare Disorders P.O. Box 814 Coaldale, Alberta T1M 1M7 Phone: (403)345-4544 and 1-877-302-7273 Fax: (403)345-3948 E-mail: cord@bulli.com Web site: www.bulli.com/cord |